Lynne's Healthcare Adventure – Part IV

July 22 - “To Normal, and Beyond!”

Dear Family,

It's been three weeks since my last report, and in that time Lynne has made an almost ridiculous amount of progress.

• She has taken to walking downstairs without using the railing.

• For her birthday last Saturday, we went to brunch, shopping, and a movie. There was more walking involved than we had planned, and she did it all with a cane, the occasional hand on my shoulder, and glee.

• On Tuesday, her physical therapy team cleared her to walk on her own anywhere, without benefit of cane or walker. They encouraged her to go out to public places, like groceries stores, and navigate with no help. 

Lynne and I were alone in the kitchen on Tuesday evening when she told me she wanted to see if she could dance, given the regenerating nerves in her right foot. I tuned the radio to a music station and we “gave it a whirl.” I'm happy to report that she not only dances, she leads! We're scheduled to attend a party this Saturday night, and Lynne is looking forward to making me jealous by dancing with every man who asks her (and many will).

I'm looking forward to it, too.

Love to you all,
Gerry


Hello folks, we're back in present time:

That was the last installment of the update emails I wrote to my family while Lynne was recovering from her surgery. As happily as the story ends, things have gotten even better since then. 

Last winter, one of the things that Lynne had had to give up was Bikram yoga, because the cyst was causing her too much pain. This past Sunday, she went to her first Bikram class since the surgery, and she experienced no pain at all. She had a great class and even felt good the next day.

Tuesday was Lynne’s final physical therapy session, and the PT gave her some really challenging exercises to do from here on out. She is running around "normally," and she's feeling increasing sensation in her right foot as the weeks go by. She is very happy her body feels as good as it does, and is enjoying the challenges of living a life worth living.  Bring 'em on!

Thanks for reading.

Best Regards,
Gerry

You have to love somebody to be enthusiastic and it has to start with yourself.
-- Vic Baranco

Lynne's Healthcare Adventure – Part III

June 21 - “Tennis Anyone?”

Hi All,

Lynne is being truly inspirational. Today she and her PT, Mike, had me witness Lynne walking about 25 feet without the aid of a walker, and walking up a flight of stairs with a railing, and back down, twice! At first Mike shadowed her, then he taught me how to do it, exactly where and how to stand in case she needed help, and the most efficient ways to catch her should she fall. But neither of us touched her once. She did all of it independently.

Mike explained that he didn't want her to do more because, while her motor skills are clearly improving rapidly, she still needs to build up her endurance. She takes some pretty deep naps between sessions. Throughout the actual exercises, and while listening to Mike's explanations, Lynne's face was beaming. It's odd to say it, but she's having the time of her life.

At one point this afternoon I was talking with the OT trainee, a truly lovely, gracious young woman named Minnie. She that Lynne was “cooperative and motivated. It's nice to have patients like that.”

More later.

Love,
Gerry

June 25 - “The Latest from LynneWatch 2012”
Hi Friends,

The plan is still for Lynne to be discharged on Friday. The main focus that remains is training her to walk properly on her right foot without benefit of much sensation in it. They can't really project to what degree or how fast those particular nerves will regenerate. In the meantime, they teach her to use other cues, like visual, or gauging the proper position of her foot by how her hip feels. Until they feel confident that she can consistently walk without endangering herself – and she makes great progress every day in physical therapy – they will keep her there. Once she does come home, she will still likely have regularly-scheduled outpatient sessions. We're holding the vision that her sensation will eventually come back completely, but we also understand that everything is speculation at this point. For sure she is thrilled that she can now sit without pain, something she couldn't do at all prior to the surgery.

Whether or not Lynne is discharged on Friday, we're aiming for her to be well enough for the hospital to allow me to take her to Lafayette on Thursday evening for the third session of a five-session course she and I have been taking there (Saying Yes to Pleasure - with Lab). She was originally only expected to miss the first session, and the school went out of its way to make sure two assistant teachers (who also happen to be our friends Dave and Millie) drove from Lafayette to San Leandro on Saturday with a laptop and DVD of Session #2 so she could catch up with the rest of us.  We're all hoping she'll be able to attend Session #3 in person.

That's the news from Lake Woebegone. Thanks for your constant good wishes.

Best to everyone,
Gerry

July 2 - “Lady Liberty”
Dear Family,

Hallelujah! Lynne was discharged on Thursday, a day earlier than scheduled. Her therapy staff determined that, since they were clearing her to attend the course in Lafayette Thursday night, they might as well let her come home afterward, rather than insist that she return to the hospital that night, only to be released the next day.

It is wonderful for everyone, especially Lynne, to have her home. One friend told her that this is when the time of patience begins. Of all the qualities I love about Lynne, her lack of patience is one of her most endearing. Her recovery is proceeding according to schedule, but, to Lynne, that's way too slow. She may have to use a walker around the house, and there are many stairs, but she has quickly started expressing her independence. She tends to park the walker when she enters a room and then use the counter-tops and furniture to help her navigate. Her weekly outpatient PT sessions start next week, but this phase clearly won't last long. She already likes to show off by lifting her hands away from the walker as she moves, in order to prove she doesn't really need it.

Updates as they occur.

Love to you all,
Gerry

Lynne's Healthcare Adventure – Part II

Dear Friends,

Thanks for your responses to the first installment.   Some of you expressed a desire to know how Lynne is doing now.  The answer is really, really, well.  You'll see as the story progresses.

Thanks for reading.

Best,
Gerry

You will never lose at calling a person to perform at his highest level.
- Vic Baranco

 

June 17 - “Lynne: Day 5”

Dear Family,

As you know, Lynne was transferred yesterday to the Rehab Center at Fairmont Hospital in San Leandro. It is much pleasanter than it had been at Highland. Less modern, but more gemütlich, like the Hollywood hospital scenes of the 1950's. The atmosphere is quiet and mellow. The room is far more spacious and her bed is by a window that opens. I brought her her iPod, which helps a lot. She met with a physical therapist and an occupational therapist for an assessment. She has yet to be able to sit up straight on the edge of the bed without pain, much less walk. The PT said the preferred therapy for back issues like hers is motion rather than rest, so they will be encouraging her to get out of bed when they start her program on Monday. He gave her some exercises to do while lying in bed that will help make her spinal cord more flexible.

Thank you all for your constant loving attention.

Love,
Gerry

June 18 - “SitRep”

Hi,

Lynne was quite cheerful when I visited her today after her first full day of physical therapy. She was able to take her first shower today since last Monday. It's impossible to overstate how much that meant to her.

Her attitude is upbeat, determined and matter-of-fact. She enthusiastically related to me the developments of the day. She gets to and from her bed and wheelchair like a pro (with a nurse standing by to catch her just in case). She has substantially upgraded her level of communication in order to be precise with her PT, OT, and nurses. She needs to be able to ask them questions and give them instructions to make sure she's fully responsible for her rehab process. In addition, many of them are not A1 speakers of English, so she has to be even more deliberate in order to get through. She seems to be thoroughly enjoying the challenge. Her goal is to be able to handle stairs without assistance before she's discharged. (There are stairs from the street to the front door of our house, and our bedroom is on the second floor.)

Our housemates have been awesome about visiting her. Not only that, but our car died on Friday, and the housemates have totally stepped up to the plate regarding getting me to and from the hospital each day to visit her. I have been offered rides by everyone in the house that owns a car. I have not had to miss a day yet. 

June 21 - “Guts and Glory”

Dear Family,

When I arrived at Lynne's bedside yesterday, she pulled me closer and whispered a guilty secret. “I am having SO MUCH FUN!” She really loves her physical therapy sessions. She says it's as if she's having a reunion with her own body. Her PT, Mike, is so knowledgeable and so dedicated, and whenever I visit she excitedly tells me every detail about every exercise they did that day, and his explanation of why they do it. She is positively glowing. It's as if she has been given a “do-over” and is starting from scratch learning how to use her body .

Lynne's pain is being managed with medication to the point that she doesn't have the spikes that she'd been experiencing often when she stood up from her bed to get into her wheelchair. She was officially cleared today to make the transfer without having to wait for a nurse to come and stand by.

Today, a couple of the OT staff took us down to the model bathroom in the Occupational Therapy department and showed her how to get in and out of the shower, and showed me where I'm going to have to install grab-bars in the shower at home so she can navigate safely. The head of OT took me aside and said she's making so much progress that the original projection of a discharge next Friday could be an overestimation, and that she may get out earlier in the week.

She's so appreciating everyone's attention and support. Today, she listened to a voicemail from my sister while sitting at lunch, and she started to cry. The nurse came over and asked if she was all right, and she smiled and said yes.

Much love to all,
Gerry

Stay tuned for Part III, y'all!

“Lynne's Healthcare Adventure – Part I”

Dear Friends,

Lynne is currently enjoying her best physical health in quite some time, and it comes at the end of a recent challenging journey through the public healthcare system. Rather than tell you the tale of the past two months, I thought it might be fun to show you a compilation of the periodic updates I sent to my family and some friends throughout the experience.

Once I put these emails together, I saw that I would be posting something three time as long as what you usually read from me, so I'm going to divide it up. This post is the first installment.

As always, I appreciate you reading.

Best,

Gerry

You only forget the things you don't care to remember.
- Vic Baranco

 

June 7 - “Lynne's Surgery”

Hi Family,

As most of you know, Lynne has had sciatica on and off for over a year. The pain has had different manifestations, the current one being that she has to stand pretty much nonstop because it hurts too much to sit. An MRI has revealed a 3-cm mass, a cystic lesion, on her T-12 and L-1 vertebrae, which is most likely pressing on the sciatic nerve. She is scheduled for surgery next Tuesday, June 12 to remove the lesion. The operation involves her lying on her stomach while they enter through her back. She will be in the hospital for a few days after the surgery before coming home. The doctors at Alameda Medical Center - Highland Hospital have an excellent reputation, so we are expecting good outcomes. 

Thanks for your good thoughts.

Love,
Gerry

June 12 - “Lynne”

Hi All,

The surgery was completely successful, in that they were able to remove the entire mass and all her post-surgery motor functions check out fine. In addition, they did a frozen section and found that the tumor was completely benign. They won't be able to know for some time about sensation (pain or numbness) or how much the removal of the tumor will affect her sciatica.

The surgical team numbered at least five, and they introduced themselves to us ahead of time, clearly competent and confident. The operation took about 6 1/2 hours, and those of the doctors with whom I spoke afterwards were all smiles at the results. When I left her this evening, Lynne was quite groggy but smiling and conversing. Pretty impressive, considering she'd just been told she'd have to stay completely flat on her back for 24 hours. I'll be returning to the hospital at 8am.

Many thanks to all for you for the constant blessings being sent our way.

Overwhelmed with love,
Gerry

June 13 - “Day Two”

Hi Loved Ones,

After 24 hours in the Patient After-Care Unit because no beds were available in the hospital, Lynne was moved to an actual room today, which she shares with three other patients. The hospital had hoped to get her a better room, but they were desperate for space in the PACU and had to get her out of there. It was quite a shock to her system. In the PACU, there had been limited access and she was surrounded by nurses. In her room, she is surrounded by patients with large families and loud TVs. In addition, her doctors had told her that she was doing so well that she could get up and move around. But when she got to her new room and tried to move, it was too painful to do so, and she had to take more pain medication. She was very disappointed, as she had been looking forward to more mobility. However, once the meds kicked in and she got acclimated to the new place, she calmed down dramatically and was actually able to nap for a while before a nurse came in with a computer and started taking all her information. I'm rallying the troops to visit her while I'm at work.

Let's all pray that her recovery is so swift that she can come home sooner rather than later to her familiar house and her close friends.

Thank you all for your love and support.

Love,
Gerry

June 15 - “Update”

Hi Everyone,

Lynne has improved immensely. Today she was able to stand with the aid of a walker. Tomorrow she is being transferred to a rehab facility in order to focus on physical therapy. She still has to take a lot of pain medication and we are told that the newly-freed nerves in her spine may take some time to recover.

Yay!

Love,

Gerry

Well, readers, that's all for now.  As you'll see in the next installments, things get better and better from here.